Reflections on Two Years Ago...

I couldn't believe when I looked at the calendar this week and realized I'd completely missed the anniversary of Ken's hemipelvectomy surgery. And more than that, I can't believe it was two years ago--and somehow--and not just last year. It seems I've lost a year somewhere along the way. I remember we didn't commemorate it last year either. It slipped past us silently--like a ninja.

That surgery was our greatest hope--to rid him of the cancer that had returned--and our greatest fear--what would life look like for him--and for me--without a pelvis and one complete leg. But either way, it was full steam ahead. Ultimately, it was his decision and I knew he would decide to proceed with surgery after we heard the limited array of options. And he had my complete support--always.

The events of that day--surgery day--are as clear me to me now as they were that day--maybe clearer, I wasn't getting much sleep then. "Daunting" doesn't begin to describe it. But in 2010 we were all so optimistic, and had every right to be. But more importantly, there was no room for pessimism for such a complex, invasive and life-altering procedure. (There was never room for pessimism in Ken's life…period.) I was surrounded by family and friends in the waiting room that morning, but in truth I'd never felt so alone. Ken was my main support pylon in every respect and despite their best efforts no one could come close to making me feel as reassured as he did.

We didn't realize the surgery hadn't started on time. In fact, it started several hours later than planned. So as the clock in the waiting room spun at a snail's pace, mocking me, I wanted to crawl out of my own skin--and into someone else's life. As the morning passed, members of surgical teams who had been so appointed came to collect the family of a patient, or at least to give the latest information. Each time someone in scrubs approached the waiting area, I clinched my jaw, hoping it would be about Ken. Each time, it wasn't.

When the waiting area attendant told me there was a phone call for me, I got nervous. No one else had received a phone call in all the hours I'd been sitting there. When she pointed to the phone on the wall on the far side of the room, it was like in the movies when they do the trick with the lens that makes an object move further away. I felt like it took forever to get to that phone. I could hear the sound of my blood pumping--and pretty much nothing else. The surgery was over, and Ken had come through it expertly. I could start breathing again. As much as I appreciated that phone call, I really wished someone would have come in person like they had for everyone else. Never underestimate my ability to question why something is done differently than the norm, and interpret only the worst possible meanings.

Ken recovered so quickly that week in the hospital. Too quickly, I think, for his own good. He was freaked out when he found out early Friday morning he'd be released later that day--after undergoing the surgery on Monday. I was surprised, but not as freaked out. (Only one of us could be freaked out at a time and he had "dibs".) He was terrified, actually, about coming home. Who could blame him? No 24/7 professional medical care. So many unknowns. It was a watershed time for me because this wasn't something we could sit down and discuss together. Decisions couldn't be made by committee during that time. It was up to me. He needed to be taken care of--physically, but more importantly, I think--emotionally. I learned in some small measure to handle things as he would have before the surgery--and ultimately after it as well. Things would be fine. Bumpy at times, yes. But we'd figure it out. And we did. We weren't as prepared at home as we thought we were, but it didn't take long for a visiting nurse to get us set up properly. Add one pushy Russian physical therapist to an already determined spirit, and what you get is hope, and a recovery for the record books.

By early spring Ken was moving freely around the apartment with a walker, pushing himself to blissful exhaustion--"sneaking" up behind me as did dishes or made dinner, and enjoying scaring the bejeezus out of me. I wasn't used to him being up and around. It was the best kind of scared I've ever been.

I don't have much of a written record in my journal of the events of that day or what followed that week because I was too…busy, distracted, scared. But I went back through my emails from that week and read them. I was sending updates to a vast distribution list of Ken-lovers with any significant developments. And they responded with the most beautiful messages of love.

Though brief, this post will be my way of celebrating such a momentous anniversary in my life. When I look back on this very solemn day I feel many things: frazzled, worried, exhausted, but mostly relieved and grateful; that Ken handled it so well and that we were both surrounded by such an amazing and loving group of people--who continue to support and love me.

For better or for worse on that day life truly became all about the journey.

A couple of days after surgery, I noticed this valentine down the street from the hospital. It was made from snow and died pink. It was like a piece of love art. It always makes me happy to think about it. It's an artistic, grand gesture worthy of Ken.

If You Build It, They Will Come (like it or not)

I grew up in the church--or rather I grew up in a church. No, my parents weren't a pair evangelical ministers--they were a pair of…other "colorful" nicknames throughout the years. I grew up in a church because my dad stumbled upon one for sale in rural town he'd driven through on his travels working for the state of Indiana. Unlike a normal person who would have just started a secret second family in this ideal isolated hamlet, he actually relocated my mom, two sisters and me to live there--after a bit of weekend remodeling.

I barely remember our previous house as little more than blurry snapshots in my head, taken by a one-year-old with a penchant for sneaking sips of grandma's beer. But I do remember going to the new house on weekends to "assist" my dad and grandfather, and to marvel at the open space of the house and yard. Having been a church, the house was wide open with few internal walls. My folks worked with my grandfather, a carpenter (like Jesus Christ - coincidence?) on creating a blueprint for the new house which cut the house up into the usual rooms you'd expect.

My parents didn't love my two older sisters enough to build them separate bedrooms. But they loved me enough to give me not only my own room, but a sort of custom upper bunk bed situation where my bed was attached to the wall and rested on my dresser, leaving a secret passage way behind it. A wide ladder was the way up to my loft bed, and thick rope with huge knot hung just at the end near the ladder. It was fun to swing on until pendulous gravity began helping it burrow up my bum. But it looked cool as hell and was the envy of any friend I had who ever saw it--all two of them (one was imaginary, but that still counts.)

Some weekends the renovation was a true family affair. In addition to my dad and Grandpa (his dad), my Pap (mom's dad) would come down to help. I remember him digging a huge hole on the side of the house--for plumbing or something. When it was done he asked me if I wanted to get into the freshly dug hole and play. As soon as I was deep into the wet earth he told me he was doing to fill the hole back in. I couldn't prove it in court, but the bury-me-alive part was heavily implied. When some adult finally came to the aid of my cries for help I was retrieved from the cavern and placed safely above ground. I'll never forget how hard he laughed while I was terrorized, thinking he was going to let me die in that hole. (I'm sure the hole wasn't as big as I remember; hopefully neither was my Pap's bloodlust!)

Once we were settled into our new abode my sisters would seek constant revenge against me out of their jealousy. One of the rooms carefully designed was a huge walk-in closet in our entry way. It housed my dad's suits and served as general storage for miscellaneous junk--and me. When my existence was deemed "a problem"--as it was from time to time by my sisters (one in particular, but there's no need to name names), I was tied to a chair with fashionable belts from my mom's terry cloth closet and force-fed ketchup sandwiches. But the joke was on them: a) I had learned to crave adventure--and kidnapping--from a couple of bionic friends and three little girls who went to the police academy, b) I looked amazing in terry cloth, and c) I LOVED ketchup sandwiches!

Other times when they'd set up their shared bedroom as a general store and play "town", I was only invited at the very end--though I'd been begging to be included since set-up. "Ronnie, do you want to play?" they'd finally ask me enthusiastically. "Yes!" I'd eagerly reply, jumping to me feet ready to dig in knee deep into "town". "Ok. We're cleaning up the town." The joke was back on me. My role in "town" was never more than "streets and sanitation," and it only worked on me every single time.

Any city family who relocates to the country gets a puppy (who may or may not turn out to be a furry despot.) When it came to household status I wasn't even a close third compared to our family's beloved "wonder dog" Buster--who was without dispute lord and master when Dad was traveling as he did back then. In my father's absence, Buster ran our household with an anything-you-treasure-should-have-my-teeth-marks-in-it attitude. Not unlike like my sisters, Buster liked--needed--to be center of attention. If someone brought a baby into the house, he'd take something from the diaper bag out of jealousy and chew it to a nub in his dark lair under my parents bed.

Sometimes, he'd somehow take something off the counter--mostly Tupperware--and retreat to his bed-framed cavern to decimate it. A simple command from my father would have gotten him to relinquish whatever he'd taken, but in his absence if there was any chance of getting it back with minimal damage, speed and Kraft singles were the answer. A slice of American cheese could sometimes be used in a primitive bartering system the rest of us were reduced to practicing. There were times during the complicated negotiation between my sister and I and Buster when his monotonous and unending growl would increase in volume and ferocity, depending on how close our hands were to whatever treasure he held in his death grip. To add insult to injury (which was inevitable if Dad was out of town) Buster would sometimes throw his paw into the object just to hold it steadier, his brown eyes never leaving us. He had swagger, no doubt about it.

Sometimes after particularly long negotiations we'd get sloppy, and Buster might release the Tupperware only to replace it with my index finger--which would have been too close during the cheese-offering/goods exchange. Gulping the cheese wasn't enough for him. He liked bargaining chips. And my index finger played tightly gripped hostage more times than Flo told Mel to "kiss her grits." It was in situations like this when I'd yell "GO GET MORE CHEESE" that more times than not my sister slump back empty-handed. "We're out of cheese," she'd shrug. I logged almost more hours on my parents' cold tile floor than I ever did swaddled in terry cloth in the walk in closet. And it was a far second choice.

(Buster romping in the foreground completely ignoring my sisters and me. Oh, wait, I'm ignoring them too, so it's okay. I think I was about to throw gravel in the faces for pay back for my bit part in "town".)

And what the hell is going on with my wagon? Why aren't I in it and being pulled around like a little prince by his two older huskier sisters?

Turning the Shiny Page

Like any story worth investing in--the kind that can sweep you up into its enthralling grip--turning the page is the only way to find out where the story leads, taking with you the sum of the story thus far. My life is that story. Ken isn't a footnote in my story, he's the theme. That won't change. And as difficult and heartbreaking it is to face a new year without him, part of me--maybe a selfish part--can say with relief "this isn't a year where Ken is sick" and at the very least "this isn't the year Ken died."

I spent New Year's Eve alone intentionally--physically, not emotionally. I declined New Year's Eve gatherings given out of the truest and loveliest intentions. (I spoke to some folks and received texts from others.) But NYE this year held a lot of weigh for me. I've spent all of the previous ten NYE with Ken. Some of them were with friends, some with family, some with both, but all of them were with Ken and many were just he and I (and Quantum) at home--whether in LA or Chicago. And unlike so many other holidays, NYE doesn't have any implied obligations. So we were free to make our own plans--or make none. It seemed incumbent on me to reflect on the events in 2011. Yes, the sad ones, but more importantly the happy ones. The times--even brief moments or seconds--when Ken and I shared a laugh or smile or held hands. Connecting with him was certainly the brightest memories I have of the year, but many others spent with loved ones--laughing, crying, and all in between--were among some of the most important ones as well.

It hardly seems possible to me that it's been a year since last NYE. It's somehow so easy to blink past all the events that occurred in the interim--including his death. I can remember last NYE so vividly, with his parents staying with us for the Christmas holiday. We didn't officially know what we were facing then, and though he was getting radiation therapy to treat the tumors we knew about, he was uncomfortable and in pain--though you would never guess the magnitude because of his "ken do" disposition. I long for him and our times together, but never would I want him to be in the kind of pain he endured daily. My intellectualizing self can wish for it with impunity, because I know it can never be. Yet even when I've wished for it, I never fail to qualify it "without cancer or pain."

I feel very optimistic about 2012 and all the promise it holds. Moving forward is never about forgetting--though at times it can feel that way. It may be an arbitrary date based on an ancient calendar, but the newness and the "do-over" aspect of the first of the year is undeniable in me--particularly this year.

It's time to turn the page and find out what's next for me and my story, understanding Ken and memories of life together will always be tucked safely in my heart--treasured and visited open. It's not a dramatic proclamation. It's really nothing more than I've already been doing for the past seven months. But something about the New Year makes it feel…shinier.

(For New Year's Eve 2004, we decided to get fancied up and head out to dinner at The Eclectic Cafe, a nearby restaurant we always enjoyed. Of course, we were the only ones with 6 pm dinner reservations, but we did have a Quantum to get home to. Ken (right) so clearly eclipsed me with sheer dapperness and ridiculous handsomeness. It doesn't take Vidal Sassoon to see I was clearly dealing with a "hair situation.")

Towels, Trips & the Hope Diamond

It's hard to remember a time I didn't live in Chicago. The city feels as much like a treasured friend as the corporeal ones I've made since moving here twenty years ago. It offers a comfort and a feeling of "home" like no other place I've lived. I consider it a city that hasn't gotten so big for its britches. It's colorful, accessible and livable.

When I was growing up in rural Indiana I always anticipated living in Chicago. And though I made one or two trips here up through high school, my first introduction to "a big city" was a pre-college trip my dad took on the weekend before I started at Purdue University. Somewhat of a reward and a definite adventure for us to experience together.

I was doing some spring cleaning/purging recently and I found myself--of all things--staring at a stack of bath towels. I needed to go through them and get rid of the older ones. It was while going through the stack of older towels I ran across a couple of striped ones that weren't as threadbare as I would have expected for their age.

The day before I was to leave on my weekend adventure with Dad, my sister presented the eight towel set to me along with a long-gone brown plastic laundry basket. I don't know why the memory is so vivid for me. Maybe because I thought by having my own set of towels I was really an adult. I was going away to college on my own where I'd be responsible for laundry, grocery shopping, cooking and all the other mundane aspects of adulthood. I looked at the towels, trying to fathom how they stuck with me--or rather I stuck with them--over countless apartment moves, including two cross-country ones. These towels were twenty-five years old and as not much of a pack rat I hadn't been able to part with them. But in thinking about the memories surrounding them my mind was flooded with images of pre-Chicago and pre-who-I-have-become me; before I'd met most (though not all) of the amazing friends I have or the experiences I've had since then; before I'd met Ken and realized a life and a love that most people only dream of. A very different me in most respects.

Going to DC was not only a thrill in itself, but it was the very first time I'd ever flown. I remember my dad not being so thrilled with the concept though he'd flown many times before, but when the engines revved and we were all pressed back into our seats during acceleration I felt a rush of excitement--like this feeling was what my life had in store. It was a rush I've never forgotten and can still give me goosebumps upon reflection.

While in the nation's capital we spent an entire feet-aching day exploring the Smithsonian. My brand new zero-support brown leather deck shoes did me no favors that day. But my dad was adamant that we see every single thing we could while we were there. Imagine my "delight" when I realized the famous national museum wasn't just one large building, but a freaking campus of many! But they were indeed chock full of important things--like Archie Bunker's chair from "All in the Family". The biggest treasure (literally) I laid my eyes on was the Hope Diamond. I had been mesmerized by a TV movie a few years earlier detailing (and perhaps dramatizing) the history if its owners and the fates that befell each and every one of them. For months after seeing it I had fleeting thoughts that its curse may have rubbed off on me. "What if…" has been with me for a very, very long time.

One day we walked around the capital and White House and monuments. I saw a man lying on the sidewalk and looked over at my dad who didn't break his gate--like it wasn't unusual. We got closer and closer until I eventually had to step over the man. I said, "Did he have a heart attack or something? Should we help him?" I turned my head back to look at him as my dad answered. "No. He's homeless. Keep walking. We're almost there." I'd never remembered hearing the word "homeless" before. Everyone in my little home town had a home to go. I'd seen "Stone Pillow" but I didn't actually think it was "real". Plus, it starred Lucille Ball, so I figured it was just some kind of comedy I didn't understand. Seeing that man lying on the grating was so profoundly sad and so indelibly etched in my memory. It was a loss of innocence I couldn't possibly understand at the time. It was an introduction to the big city and a glimmer the world that was yet to come.

At the hotel my dad had befriended a man and his wife who were visiting from Verona, Italy. (Where Romeo and Juliet lived!) The husband didn't speak a word of English. Neither did his wife, but she did speak Spanish as well. I'd had four years of high school Spanish and our conversations were painful and filled with lots of nervous, time-filling laughter. But it did offer its moments brilliance when I realized I had gotten my point across to them. Over the course of the weekend my points became shorter and shorter. "How are you to day?" to "Good morning" to "Hi. We good. Bye." They were of course more patient and sublime than I would imagine an American being in their position. "Do you speak English? Does ANYONE HERE speak English?! UGH!"

Anyway, long story short…I kept the towels.

As The Birthday Approaches

It's impossible to no think of Ken…period. But as his September 21 birthday approaches, he's on my mind more and more. It's not all sad, in fact, thinking about this weekend one year ago brings nothing but a smile to my face. I'd arranged for a couple of surprises. We were both working full days at home at the time because he was receiving daily radiation treatments. As 5 pm loomed closer, I became more and more excited. After work, we always headed out to the backyard for cocktails (for me) and mocktails (for him since we were under the impression he couldn't partake. I went out first with our drinks and sat them down on the table, but just around corner of the back of the house two Californians were eagerly awaiting to perpetrate the surprise. Ken was an expert at pulling surprises. They were alway magnificent and multi-layered. Pulling them off on him I'd learned over the years was almost impossible. But I think we had him.

I went back in to wheel him up the ramp. He was undoubtedly dealing with pain in spite of the narcotics. At this point he was just happy to be spending the evening with me. But as I moved him to the table and his head lifted to look at the yard, his gaze was drawn to the back corner of the yard where his brother Craig and sister-in-law Katie jumped out and yelled the proverbial "SURPRISE.' I wish I'd had the presence of mind to take a photo of his reaction. It was beyond shock, yet the corners of his mouth began lifting. We had done it! He couldn't believe they were here, and even more, he loved it that they were here, and probably even more excited that I'd collaborated with them to pull this one over on him. I remember how moved he felt, and how grateful. He hugged them both for a very long time. It's a moment I can relive on demand. It was so special and full of so many meanings. It's treasured.



We sat around outside and talked and laughed A LOT. I made chili and cornbread that we ate al fresco as we continued our fun fest. It was an amazing day. I don't think he could have been any happier if he tried.

Knowing Mr. Body in Motion, the question was posed as to what he wanted to do for his birthday. So the next day we set off for the Lincoln Park Zoo and its neighbor the Lincoln Park Conservatory (which has always been a preferred destination for him.)



We spent the entire afternoon there there, exploring and observing the animals before heading over to the Conservatory to check out the fauna. It was a perfect day for him. We all too great care of him. I remember feeling how nice and safe it felt to be out traveling with him with Craig and Katie serious back up. The four of us have a very strong, loving, and humorous bond.

The rest of their visit we just hung out and cooked and fed our faces and talked and laughed. Our time together is always easy and always filled with laughter.

The one last surprise I had to present to him was a book I'd been putting together for months called "the ken-do dictionary" as an homage to his body-in-motion attitude. I'd solicited words from friends and family that could be used to describe him. And no one disappointed.

Click the graphic to see the book.

Nostalgic by nature, I've been thinking a lot about that weekend on this anniversary. I'm so grateful that Craig and Katie were able to come. Ken (and I) had a wonderful time with them (as usual). It was a weekend I'll never forget and will probably think about a lot. I'm not sure how I'll feel on Wednesday, but I have taken the day off and am hoping to mimic some of the activities we did last year.

Belonging

It's not often I'm able to get together with four of my closest friends--at the same time. The last time all five us were together was at my birthday a couple of years ago, where Ken orchestrated two of them who came the furthest (St. Louis and Los Angeles) as surprises. Alan, Kathy, Retta, Tina and I comprised "the A-List"--what we named ourselves when we met while studying at Second City--and they have been constants in my life ever since. We share the "wrongest" pleasure in harassment of each other as much as we are fiercely protective of one another. Having grown up the outsider in many ways, and the one who found "apartness" so appealing, the A-List was the first group I ever felt like a belonged to. It was my tribe…finally and effortlessly.

I've been in contact with all of them in one way or another always, and in particular, since Ken's cancer returned last year. I was checked upon and double-checked upon; I have called, texted and emailed while I vented or cried or ranted. I can imagine there may have been communications among the four of them I'm not even aware of. So, it was with great relish that I looked forward to the four of them converging on my apartment this weekend for a long-anticipated and much-needed reunion. There have been few times in recent months where sorrow isn't something that I have to actively combat. The time spent with the A-list is one of them. I remember noticing that in between laughter and conversations and jabs; that I felt transported and "normal" and loved. During the time I spent with them I didn't feel empty or missing anything. I was whole--complete in every way I needed to be--and loving every single second of it.

There is a power and an energy that is purely magical when the five us are together. And though the anticipation sets the bar high, the actual time together always exceeds expectations--and boundaries. There are certain things that can be counted upon in such cases: ripping on each other mercilessly, mad laughter as a result thereof, and the same reminiscences about "the good ol' days". Old stories shimmer like new with long-forgotten nuances, uncovered and embellished.

I was excited to have company so I could get busy in the kitchen and try out some recipes I've had ear-marked for quite a while. Feeding these people I love so much, and hearing their voices and laughter fill my back yard all afternoon and evening--then my apartment as we moved indoors later in the evening--filled me with a sense of peace and security that was both familiar and foreign. Knowing I have these people in my life with their non-stop love and unfailing support of me is great source of strength.

In spite of the fun of the weekend, Ken was never far from my mind--as always. He loved the A-List--perhaps an acquired taste for spouses to manage--and he appreciated what I had with them; and what they gave me. When it came to having company, Ken was the master chef, getting creative and delighting in serving tasty morsels to our guests. I'm sure that's at least part of the reason why I did too. Doing things he loved makes me feel connected him. Honoring him in even the smallest of ways makes me happy. He loved our friends and he would have loved seeing all the goodies I made: Lemon Blueberry Buckle, Blue Cheese and Walnut Crackers, and Goat Cheese and Sun Dried Tomato Profiteroles.

I wish I could feel the way I did this weekend every day--especially in light of an impending Monday. It's impossible to come off such a high without wishing he were here to end the weekend with, talking about all the verbal debauchery, reliving it and laughing at it. Regardless, it was undeniable that Ken was here this weekend; inspiring me to get excited and creative in the kitchen (not to mention to sweep the patio--something he did without prompting every time we had company). He was also here in another very special way. Our friend Bruce competed in the Chicago Triathlon today in memory of his sister-in-law and Ken. It was a beautiful gesture that is so fitting of Ken.

He was definitely here this weekend--just not in the way I wish he were.

Writing and Rambling

I have always loved the idea of sitting at a coffee shop and clicking away on the keys of my Mac to some stunningly witty piece I was working on, but in truth sitting alone has never held much fascination for me. Alone at home is one thing. Alone in public has always been quite another. Same with restaurants and movies. I've still yet to see a movie alone, but is still something I hope to accomplish.

The lure of writing outside the house is just that--to get away from the same old distractions and finding new ones seems attractive! But today I knew I needed to get away. It had been a difficult day. I had Ken on the brain and couldn't stop punishing myself with photos, words and memories. "Dosing" myself seemed a bit out of my control. What set it off was getting a call from Costco that the old video tapes I'd dropped off in July had been converted to DVD and were ready to be picked up. I barely remember hanging up the phone and driving there, I was so entranced by the idea of seeing and hearing Ken. One tape in particular detailed our move to Los Angeles in 2002. We packed up our lives, our Chow and each other and drove for nine adventure-seeking days in our Geo Metro. It was the boldest thing I'd ever done.

As I watched the DVD, no tears. Just a unshakable grin on my face, hearing and seeing him and my beautiful puppy Quantum. I'd forgotten the nitty gritty details, but what I could see was we were clearly in love and obviously excited about the future. I so clearly remembered how secure and safe being with Ken made me feel--from the get-go. He just had a way of handling change--and always did. He could take the edge off of any new situation for me and make it okay. It's still hard not to feel that sadness when I think about that particular benefit of loving--and being loved by--Ken. Everyone wants to feel safe and loved. And I did in spades.

In spite of almost talking myself into writing at the patio table, after work I grabbed my Mac and some supplies and headed over to a coffee shop nearby that we'd always talked about trying out. And it's from there as cars glided by from the stop sign on the corner that I wrote this blog. I saw some beautiful pooches parading by, teasing me with their "shiny hineys". I watched two friends part company on the corner as I gathered one was moving far away. They both kept it "light" but it was clear they were both quelling a lot of emotion. It was an interesting exchange to watch--objectively. And I was happy to play no part in it. She had chunky glasses and purple hair. He had a close-trimmed beard, and by the way he flamboyantly called her "guuuurl" was pretty much gay. I imagined he'd finally saved up enough money to transfer to a Kinko's in San Francisco--the "mother land." Clearly, I have tools for keeping it "light" too. Damn my distraction-seeking imagination.

I spent about an hour going through our book--which I compiled in hard copy the other night from things we'd both written--and edited some parts I'd written a while go. I also tried to work on how it will be organized. It's exciting but daunting, and getting out of the house to begin tackling it was the right decision. I unwittingly became one of "those" people who sit outdoors at coffee shops and talk too loudly on the phone to compete with the traffic whisking by when my friend Beth called me to check in on me.

After two hours I was chilled sitting in the shade, and decided to pack it in to head home. I felt accomplished that I'd finally gotten away. It did make a difference in my ability to focus, and I'll do it again. Unfortunately as I walked home I realized I no longer had possession of my wallet--which I'd had when I bought my cup of coffee earlier. So I did an about face and headed back to the coffee shop. I'd called on the way, and she'd found it--on the ground under the table I'd occupied.

Clearly, I have some packing glitches to work out before I make my next coffee shop appearance, but taking a page from Ken's book, shit happens, but it's how you handle it that determines its weight in your life.

Some Assembly Required

Last year after Ken had surgery and was recovering from 12 weeks of chemo, we were optimistic about the future. So much so, I decided to write a book, documenting everything he and I had gone through. As a chronic journaler who keeps a detailed calendar and diary, I had plenty to draw upon. I began pounding away at the keyboard in the evenings--sometimes in my office if he was sleeping--and sometimes sitting on the couch with him in the living room as we watched TV and talked. When I explained what I was doing, he said he wanted to write a book about it too. He'd already written a one-man show called "My Foot Left" that was well-received by audiences in Chicago and Los Angeles. I suggested we collaborate. It's something that we've always done well together. To get him started, I sent him what I'd written so we could figure out if I was going in the right direction or if we needed to make some tweaks.

As the summer wore on and August approached, bringing with it another diagnosis that ultimately had no curative measure, the book fell to the sidelines for both of us. I still journaled--a lot--but I thought I knew the ending to the book I was writing and went very much along the lines of "they lived happily ever after…" Endings in general were something I stopped thinking about it. We were both facing one that we didn't want to come.

In recent weeks I've looked over the draft I started because I was ready for it became important to me again. To tell our story…to tell Ken's extraordinary story. After meeting with Claire last week, and receiving so much encouragement from her to continue pursuing this, it has been in the forefront of my mind.

So, this evening, I pulled out the external hard drive that I'd recently pulled most of the documents from Ken's computer onto and sat on the couch going through them. Never really regarding himself as a writer, I was stunned by the prolific amounts of writings I found--many of which I'd never seen before. It stung a little bit at first, but mostly it was fascinating and made me so proud. That he'd knowingly or not, left so much of himself in these writings to help me tell our story. I could hear him read each and every word, and it made me smile.

I was overwhelmed trying to figure out how to organize all the potential pieces that would be included but I set up a system that will work for now. Once I have most of what was on his computer, I'll go back to structuring and seeing how it would best serve the story. Aside from that, I have old diaries of both of ours to go through which I'm kind of excited about in a very I-shouldn't-be-doing-this kind of way. But as a journal, I know there is gold in them there mines.

But my mood all evening was focused and happy as I worked to gather the pieces he'd written. It's exciting that I can still do this for him--for us, and share something that has to be shared. It's not so much I feel that I owe it to him, but that I owe it to myself in order to honor him and his extraordinary outlook and legacy. It will take a lot of time to put it together, but it's a project I'm really looking forward to tackling and doing it well.

Another way, I suppos, I can make sure he isn't forgotten--if that's even possible.

Ojai, How Are Ya?

Like most small town kids, I had a 25" console television in my bedroom when I was growing up. I was a shy, introvert who spent hours alone, entertaining myself. But no matter what I was doing, the boob tube was on, beckoning me into one zany adventure after another. I made many friends in the land of make believe. At the top of my list are two people: Steve Austin and Jaime Sommers.

Jaime (yes, that's how she spelled it) was one of my closest childhood friends. Steve Austin and I were tight too, but Jaime embodied much more of a fun contrast for me. Cute. Sweet. Funny. And could kick some Fembot or Bigfoot ass when called upon to do so. She could also chop vegetables faster than a Cuisinart and when faced with no can opener, could use her bionic fingernail to get at those baked beans. She was the whole bionic package. She, Steve and I shared many bionic adventures together. As a lazy kid, it was fortunate that in order to play "bionic", I just had to move in slow motion. This kid wasn't going to break a sweat!

I was giddy to discover Season 2 of the "Bionic Woman" was available on DVD in May, and I snatched it up as soon as it went on sale. Ken was sleeping more then, so after the house was quiet and kitchen was clean, I sat in front of my computer and watched a couple of episodes. It was like an emotional orgasm of childhood, bringing back the wonderment and security of childhood. In spite of the wonderful distraction it provided, something told me to put them away; and that they would better serve me later. Soon after he died and I found myself alone and never in great need of a distraction of bionic proportions, I pulled out those DVDs. And they served me well.

My obsession with Jaime made for a couple of my very favorite outings when we lived in LA. Always up for a day trip, Ken asked me one weekend where we should go. I didn't really know how far away it was, but I suggested Ojai, where Jaime Sommers lived in rustic apartment above the horse barn of Steve Austin's mother and step-father. (GEEK ALERT: They had also become her legal guardians when she was a minor because her parents died.) After the couple-hour drive, we explored the quaint town and had lunch. We took a drive out of town into the Ojai Valley and passed some beautiful olive farms. We drove through some tunnels that had been blasted through the mountains, and stopped to admire this subtle and beautiful waterfall.



Further down the same road we happened across a state camp ground. I'd never been a camper before I met Ken, and he'd taught me to love it. So we made plans to return later in the month for a long weekend. Little did I suspect that he'd hatched a plan to bring Kathy, one of my Chicago besties as a surprise. It's one of my favorite memories. My bionic obsession was well-known to Kathy. She revealed to me late in our friendship that while on a trip to Universal Studios in the late 70s, that she had been chosen from a tour group to be "Jaime Sommers" in a tug of war with several large burly men. In true Hollywood fashion--sound effects and all--she yanked the rope and dropped all the would-be assailants to the ground like potato sacks. It was extra special to share an evening under the stars with her in my beloved Ojai. It's funny to think of all that as I watched those episodes and felt the comfort of those few nights by the camp fire with Kathy, Ken and Q. It gives me just as much comfort now.

However, was it completely coincidental that I fell in love with a handsome hottie with a bionic leg?

The bionic theme continued at Ken's soiree--which took me completely by surprise--and only enhanced the experience in a very special way for me. During the prep for the event, my friend Terry presented me with a gift bag. Along with pushy Kathy, they both insisted I open the gift in front of them. Opening gifts in front of people is an IBS-inspiring moment for me. As an improv teacher once told me, I'm just not that good of an actor, and contrary to popular opinion amongst the rapscallions I run with, I don't (always) enjoy seeing people cry in disappointment. But this surprise made my heart leap.

In true 70's "women's lib" fashion, it's the Bionic Woman's Bionic Beauty Salon. No, of course, it couldn't be Jaime Sommers Covert Ops Training Center! Who the hell would buy that? Oh, wait…me. Of course, I would have begged for it if it were The Bionic Day Care Center (bionic pooping babies sold separately). But I think the point is Jaime had choices--a pink house coat or her tennis whites…hmmm…life is full of difficult decisions, no? And of course, a photo of pseudo-boyfriend Steve Austin is displayed prominently to remind Jaime why she has to be beautiful. And finally, in spite of the geek-known fact that bionic skin doesn't tan, there is a huge nuclear-powered sun lamp center stage at the salon. From the brilliant, in-touch minds of Kenner!

Make no mistake, I love my Bionic Beauty Salon. Watching the show recently--like watching it when I was a kid--enveloped me in a world where people could do things that were surprising, if not superhuman. It was a message that resonated with me--and still does. I'm no former-tennis-pro-turned-undercover-8th-grade-bionic-teacher-who-saves-the-world-on-a-weekly-basis-and-looks-vintage-doing-it, but my life--like everyone's--has been faced us with situations and people that we found overwhelming, yet somehow found a (perhaps surprising) way to overcome it. Hence, we are a little bit bionic. Watching Jaime kick some bootie reminded me that she was in a sense (as I imaginarily inserted my character of her younger brother Brody into all story lines), and as i watched them a few weeks ago, she was doing the same thing: protecting me--this time, emotionally. Focusing my mind on something so magical and fun and fraught with good memories made me feel so good and it placed a short moratorium on sadness. It's a weird connection to the kind of naive strength and ambition a kid can have--before society beats it out of him.

Now I have a little bit of Ojai sitting in my living room--as well as a huge target on my forehead for mocking by aforementioned rapscallions. Mock away. I have to brush Jaime's hair. Steve just called and said he was running over--at 60 mph no less. Ugh.

Ken's "Leg"acy

This time last year Ken and I were spending a lot of time with his amazing prosthetist David and his team at Scheck & Siress at UIC. David created built the most mind-blowing prosthetic leg for Ken and after multiple fittings Ken was rocking it like--well, like only Ken could. (Click here for video. Both "high fives" are with David.) Two people who worked on David's team had leg prosthetics themselves which helped create a secure and supportive environment. Going there for fittings was more like visiting with friends than anything else.

I'd meant to donate the prothetic leg to David earlier, but I hadn't been ready to face actually doing it yet. Regardless of the good it would do others, it was still a piece of Ken for me--a really important one. Some of the best memories I'd had with Ken in the past year and half--and certainly some of his proudest moments--involved him using that leg. I'd emailed David previously to let him know I wanted to donate the leg, and followed up with him earlier this week to see if he'd be around on Friday for me to drop it of--as well as see if he could use Ken's wheelchair and some other medical equipment.

Aside from the amazing work David does for Scheck & Siress, he also volunteers his time for an organization called the Range of Motion Project (ROMP) which goes to third world countries or disaster areas to fit people with prosthetic limbs. It was this organization to which I was donating the leg. Ken was riveted as David talked about he and his team going to Haiti after the earthquake, and upon our last visit David was preparing to go to Guatemala. If Ken were still here, I'm positive he'd be accompanying David and team to Central America for their next visit (volunteers are welcome).

I hadn't seen David since Ken's and my last visit there in September of last year for another fitting and more practice--though by then Ken had taken the leg home and was using when he could. David had let me know he wasn't able to attend Ken's soiree because of his patient load, so I was looking forward to seeing him, yet with most "firsts" since losing Ken there is a bittersweet edge to be dealt with. Some of my happiest memories were in those basement offices, and going there alone to see people who he'd had such an affinity for (and vice versa) was daunting.

I knew he'd be busy with patients, but after I dropped everything off, David made time to come out and speak with me. After we hugged, we talked for a few minutes; about the soiree; about how I was doing; about how he was doing. He looked the same as the last--and every time--I saw him. His face and body language engender trust and kindness. He thanked me for the donations and went on to tell me a few things that I found--and still find--utterly amazing.

He has a new patient via ROMP who he will be donating his time to. This young man (20 years old) from Poland recently had a left hemipelvectomy (same as Ken--which is a very rare surgery), and with no insurance will benefit from the use of Ken's leg. Those of you who know me (and my last name) know that I'm Polish, but Ken was actually more Polish than I am. Not sure if that means anything, but I, no longer a believer in coincidences, found it interesting. David went on to say this young man is of similar stature to Ken, so adapting the leg for his use should be of little concern. Even more, he generously offered to send me photos of the fittings as they progress so I can see Ken's leg as it morphs into this young man's leg. I am thrilled beyond words to share in this experience. Without infringing upon the recipient's privacy, I'll do my best to share photos from time to time. So many things feel right. It's obviously meant to be.

It wasn't until later that evening where I had to take another step I hadn't expected. A prosthetic leg was a part of Ken--whichever one it was--since I'd know him. There was always one in the house whether he was using it or not. And now it was gone. So many hopes were pinned on that leg. For a while, it was what made what he'd gone through "okay" in many ways. Just that there was a prosthetic for him after such drastic surgery was astounding--let alone how quickly he adapted to using it. The day's events made for quite a difficult evening for me. But as a friend pointed out it was another step--another journey--which in the end helps me to continue to process my loss and to grieve.

Aside from my moments of sorrow, knowing how thrilled Ken would be to know his leg was going to someone who could make good, long use of it offers me great comfort. David felt similarly in saying he felt the timing was uncanny, and it was Ken saying "here you go, kid", and I don't disagree.

I so look forward to the journey via photos of this young man is embarking upon--with a charmed piece of Ken to help him find his way.

Once Upon a Time...

When you're truly happy in your life, and loving it, that's when things get even better--at least in my experience. I'd spent my twenties dating unsuccessfully and lamenting the fact I didn't have a boyfriend. It became my "schtick." Most all of my friends were coupled, and making fun of my singleness became my way of coping with it. When I turned thirty I opened myself up to meeting someone online--the advent of computer dating. What followed were a string of disastrous--albeit, funny dating experiences. (Blogs to follow!) About a year later, something changed in me. I looked around my life and realized how lucky I was. My choosy nature had surrounded me with a close knit group of friends. I had a job I excelled in, and I'd completed a long-standing dream of attending Second City's two-year improv training program and conservatory. My life was full and happy, and my dreams were mine for the taking.

On this cold night in March I treated myself to a night out to a little neighborhood bar near my apartment. The bartenders were friendly and the crowd was usually chock full of smiling regulars. It was unlike the bars on Halsted in that it was tiny and tucked away in quiet Ravenswood. I remember it was unusually crowded that night and I was lucky enough to be at the right place at the right time in order to get a seat at the bar. One of the bartenders hooked up me with a cocktail (probably a cosmopolitan), and as I sipped it I surveyed the people around the bar, not really looking for anything in particular. Just being. My eyes caught sight of a handsome man sitting further down where the bar turned. He looked familiar. And did I say handsome? Woof!

Then it clicked. It was Ken. This night wasn't my actual first meeting with him. I'd first meet him a couple of months earlier (January 12 to be exact). I happened upon him that night as he sat alone against tiny bar that lined the wall, drinking a beer and scribbling on a piece of paper. Imbued with the confidence only a vodka-tonic can instill, I sat down next to him and asked what he was writing. I slid the paper away from him and toward myself and boldly read it--or rather pretended to read it. (Hey, I was just looking for an "in", people.) We enjoyed some playful banter which somehow led the conversation to theater. He was an improviser himself. I remember being so excited to have someone to talk with about improv. I never performed professionally, as he did, but the thoughts, comments and experiences we had were common. However fun that night was, it somehow went off the rails for us through a series of misunderstandings. We parted that night abruptly, and though I was sad that it hadn't worked out more to my satisfaction, I relied on my new outlook to get me through. It apparently wasn't meant to be.

Or was it?

Now, back to March 23. When I saw Ken I immediately thought he'd have no interest in me--or might not even want to catch sight of me. Yet I couldn't help but gaze over at him from time to time. He was playing darts with some other guys and seemed to be having a good time, undaunted by my sneaking glances. A little while later, I passed him as I headed to the facilities. He stopped me, said "hello" and re-introduced himself to me. "I remember you," I said, nervously then excused myself to finish my mission. It was an awkward exchange, but I realized "hey, he's not angry with me." That thrilled me. I noticed a while later as he played darts, he was dealing with a very drunk admirer who he clearly had no interest in. When he walked past me again he said as much. This was it! An opportunity to use my improv skills--something we had in common. I told him I'd help him out, and just waited for him to give me "the signal" (a la Carol Burnett tugging on her ear lobe.)

I fortified myself with another cocktail and soon glanced over to see him giving me the sign. I swilled what was left in my glass and boldly marched over to Ken and the perpetrator. Voice low and fuming, I posed as the loyal--and deceived--boyfriend. My tirade sent the ne'er do well transgressor onward to his next victim as he lilted away quietly (like any plant under my care) during our "lovers' quarrel." I grabbed his hand, proclaiming "we need to talk!" and pulled him around the corner out of sight of everyone. "Was I butch enough?" I asked, covering my mouth in the most (intentionally, right?) feminine fashion I could muster. Ken didn't just approve, but lauded my performance with gratitude, his trillion dollar smile, and a drink. We spent the rest of that night talking, laughing and sharing our thoughts, dreams and non-stop laughter.

Seven years later at my 40th birthday party, Ken surprised me with many things. One of the main surprises was asking guests beforehand to write a scene about how each of them met me--then act it out. He wrote a scene the described what I described above. It was a wonderful celebration of our meeting. I actually have that scene--all of them, in fact--on DVD: another gift he gave me. I watched the DVD of the party on my birthday last month. I wondered it if it was the right thing to do, but it so was. I was all smiles--just like I was that very night and at my party. Watching him and my friends re-enact that meeting is an inexhaustible source of joy for me.

As for the "real" meeting, my life was forever changed after that night. Ken and I were together from that point forward. All of the natural fears in getting into a serious relationship assuaged naturally over time, and we just melted into a single unit: the kenron scandal. Yes, we still had our individual identities, but together we were bigger than the sum of our parts. Thinking of that night and this blog as I type it leaves an undeniable smirk on my face. The magic of that night lingers around me.

Thank you for suggesting I write about it, Claire.